Seeking Help for IBC
If you are seeking help or are looking for answers from others dealing with Inflammatory Breast Cancer, here is the place.
A new IBC clinic has opened in Arizona, directed by Dr. Julie Lang. The most direct way to schedule a patient to see Dr. Lang is via her clinic at the Arizona Cancer Center at Orange Grove 520-742-4183.
If a patient needs to see any specialist at the Arizona Cancer Center, they may call 520-694-CURE for an appointment.
To the lady in Palm Beach County that called our toll-free line this morning:
When you left your message, your phone number was cut off. Please call back and leave your phone number again.
Thanks.
Claudia
She is a breast cancer Dr. I am in Greenville NC. I am going to Duke in NC to have gene testing and to see what clinical trials. I watched the last show you had and I also saw on the IBC newsletter where Dr Mason had come up with a protein inj for people with the ALK gene for the skin mets!! Thanks so much!
Sharon, Are you being seen by a doctor who is familiar with IBC? That would be my first option, and a second opinion on Xeloda if it isn’t working for you. There are many trials open for IBC patients who have not had good response from other chemo regimes.
You might want to join a group that has 100′s of IBC patients … http://www.ibcsupport.org. Depending on where you are, when you join tell people where you are (in the world) and I’m sure there will be someone from your area.
God Bless
patti
NANCY, I hope you are seeking a second opinion with a doctor who is Totally knowledgeable in IBC.
Patti
I was diagnosed in 7/09, i have been cancer free in my body since my treatment. About 8 mo ago I started to get skin mets. I am on Xeloda for six mo. I have a mo left and cannot see much difference!! Any suggestions that I can give my Dr. good health otherwise. Thanks so much. Sharon